Who are they?
Rare Disease UK (RDUK) is the national campaign for people with rare diseases and all who support them.
RDUK provides a united voice for the rare disease community by capturing the experiences of patients and families. We work with our supporters to raise the profile of rare diseases across the UK. We seek to bring about lasting change offering better health and quality of life for individuals and families affected by rare diseases.
You can learn more about them by clicking here.
You can read more about the work they do here.