Who are they?
Rare Voices Australia (RVA) is Australia’s non-profit, national peak organisation advocating for all who live with rare disease. RVA provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare diseases. Patient-centred, RVA works with all stakeholders including patients, key peak bodies, governments, researchers, clinicians and industry to promote rare disease research, diagnosis, treatment and services.
You can visit their home page by clicking here.
You can see a list of member organizations that support all rare diseases here.