MCAS & Mastocytosis Advocates:

Advocacy Organizations, Educational Organizations, Research Organizations, Support Organizations / Tuesday, December 26th, 2017

Who are they?

Global Genes®  is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009 , with just a few rare disease parent advocates and foundations , has since grown to over 500 global organizations.

You can visit their home page by clicking here.

You can apply for a Rare Patient Impact grant by clicking here.

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